Today, Rylee went in to one of the local university hospitals to a pediatric rheumatologist. We believe she has Raynaud's syndrome in the primary form. What in the world is Raynaud's??? In layman's terms it is a syndrome that causes extreme cold hands and feet. Since the late winter of 2007, we have had one strange incident with regard to her skin each year. Every year, it rears itself in winter or late winter. In 2007, it was a strange breakout all over her cheeks. We attributed that to an almond allergy (have had no problems since with nuts/legumes) . Last winter, it was strange bumps all over the palms of her hands. That involved trips to a dermatologist who was...how should I say it... a little wacky! A few months ago, it was swelling and sores on two of the knuckles on her hand and on the joint of her index finger. It took forever for those to heal and thus the concern by our pediatrician and the referral to the pediatric rheumatologist. Our kids are just like our cars...By the time you can get into the doctor, the symptoms and evidence are gone! Luckily, I did have some pictures - I will spare the photos this time as they are not very appealing. Unfortunately, I was still unable to answer a lot of the questions he asked. Oh, I hate not being able to answer their questions...I have no idea what color her hands change as they go through the process of getting cold and warming up-I have no idea what triggers the condition- I have no reason to believe that they hurt her, she never expresses pain...I wish I could give him all the answers he was looking for so that we could pinpoint the problem, but I just did not have them. Thankfully, some more serious diseases associated with Raynaud's were ruled out prior to our visit through bloodwork - Lupus was one of them. We will continue to monitor her and taking those photos. Hopefully, Raynaud's is all that it is and that this is the cause of her hands taking longer to heal. Time and another winter might provide us with more answers one way or another.
Speaking of Rylee's hand, that little mongolian spot on her hand is slowly disappearing as we were told it would as she grew older. It makes me so sad to see it go. If asked about the spot, she will tell you that that is where God kissed her. It was that little spot that China deemed as a blemish and that God used to reaffirmed to us that she was our daughter. For those that do not know the story, there was a little discrepancy over a photo right before we were to meet her. I love the little spot and although it does not make her who she is, it is a part of her! Okay...done getting sappy!
